
A model prepares for Thursday's thaw fashion show at a fitting. Photo by Lance Mercer.
What do folk legend Woody Guthrie and Thursday's second annual thaw fashion show, a benefit for Huntington's disease, have in common? Guthrie, who wrote a handful of songs about the Pacific Northwest ("Roll on Columbia", "Grand Coulee Dam"), was diagnosed late in life with Huntington's, a genetic disorder who's symptoms manifest as a combination of Alzheimer's, Parkinson's and MS.
Though Guthrie was diagnosed in 1952 and eventually died from the disease, there is still no cure. It was Guthrie's wife who helped to found the Huntington's Disease Society of America- the NW chapter of which, Liz Weber, the wife of Seattle musician Stone Gossard, is now president.
"When I became president of HDSA, my first order of business was to create a fundraiser that would appeal to an audience that had never heard of Hungtinton's Disease," says Weber of the impetus behind the event that raised nearly $50,000 last year for Huntington's- a disease that her mother also suffers from though Weber herself does not. With the funds raised, the organization was able to send 14 people to the 2007 National convention for HD families--one of the only places where many who are affected by the disease say they can feel normal--as well as increased the hours worked by a social worker who provides free services to HD families in Oregon, Washington, Idaho, Montana and Alaska.
The inaugural thaw show was such a surprise success, that this year, they've more than doubled their capacity. What this weekend was a cavernous concrete floored warehouse in SODO, filled with racks of chic clothing and models shivering as they tried them on, will tomorrow be transformed into a full on fashion show complete with catwalk, beautiful people showcasing the work of nearly 30 independent designers and awareness for the cause of the hour.

Liz Weber helps with the model fittings. Photo by Lance Mercer.
"Huntington's Disease is rare. In the Northwest, we hadn't gotten masses of people to attend events by marketing our cause," says Weber, " I figured that fashion was a way to access a piece of our community that wouldn't otherwise find a connection to Huntington's Disease."
After last year, Weber has had no trouble attracting the work of designers from the Northwest--Seattle lines like Alula and Leanimal, Portland bringing standouts such as Kate Towers, Holly Stalder and Frocky Jack Morgan--and beyond. Their work will be highlighted on and off the runway, in the thaw shop, where show goers can purchase donated items that range from handbags by Sabrina Love and Kimberly Baker Jewelry to limited edition tanks.
"I love independent designers. They are the artists that I support," Weber asserts. "This event brings attention to emerging artists and a rare disease. For me, it's a two for one deal."
For tickets and more information on Huntington's Disease visit www.thawfashionshow.com